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When: Saturday, July 21, 2018
Where: Metzler's Ranch Park
4175 Trail Boss Dr.
Castle Rock, CO 80104
Schedule:
Participation Opportunities:
Sponsorship Opportunities:
Watch for a full list of sponsors joining soon!
EVENT SPONSOR
Becky & Chris Morley
GRAND SLAM SPONSOR
Brad McDonald
HOME RUN SPONSORS
Denver Flooring & Finishes
Diesel Dogs Food Truck
Mile High ATM
The Crestone Company
TruFit
TRIPLE SPONSORS
104.3 The Fan
5280 Developments, LLC
Applewood Golf Course
Denver Broncos
Kona Ice
Graham McDonald
PEMA Foundation
Mary Post
Raccoon Creek Golf Course
Sprinkle Me Smitten
Kevin Thibault
DOUBLE SPONSORS
Area Newsletters
Bill Clarke Keller Williams Action Realty
Broken Tee Golf Course
Castle Pines Jewelers
Chuze Fitness
Elvis Cinema, Littleton
First Bank, Littleton
Fox Hollow Golf Course
Heritage Eagle Bend Golf Club
Highlands Ranch Golf Club
Marek Group
Max Waste Services
Meadows Golf Course
Plum Creek Golf Course
Red Hawk Golf Course
South Denver Gastroenterology, P.C.
The Links Golf Course
The Ridge at Castle Pines
SINGLE SPONSORS
Astro Tap House
Molly Berger
Ann Brooks
Car Wash at Happy Canyon
Alberta Carpenter-Petri
Christopher Dru
FirstBank Holding Company
Jessica Hageman
Mary Kapphahn-Brough
Mountain Connect
MZ Electric
Orangetheory Fitness Castle Rock
John, Karin, Jackson & Madelin Phillips
Popcorn Bliss
Precision Media Solutions
The Egg and I, Castle Rock
The Schmidt Family
Greg Thewes
Jonathan Williamson
Wood House Day Spa
What is Bombers for Bones?
Bombers for Bones is a Home Run Derby & Skills Competition in Castle Rock, Colorado open to all ages!
Participants will attempt to hit home runs off a live pitcher to compete for trophies and titles within their age groups. In addition, participants are invited to test their baseball skills - pitch speed and accuracy, and time around the bases.
Enjoy baseball themed food, bid on our silent auction, purchase raffle tickets for amazing prizes, and so much more!
Funds raised go directly to the International Fibrodysplasia Ossificans Progressiva (FOP) Association - IFOPA. The IFOPA is a nonprofit organization that supports research for FOP treatments and a cure, provides support to patients and families living with FOP, and hope to our family.
Teams and individuals of all ages are welcome! Join us as we raise funds in search of a cure for FOP.
What is FOP?
Fibrodysplasia ossificans progressiva is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There is no treatment or cure for FOP. There are no other known examples in medicine of one normal organ system turning into another. FOP is a genetic disease affecting 1 in 2 million people. There are only about 800 people worldwide living with FOP.
The funds raised will go towards research grants working on treatment of FOP and support of IFOPA patients and their families. There are now two worldwide clinical trials for potential drug treatments for FOP actively recruiting patients.
Our fundraising efforts are focused on moving the research along so maybe, one day, those with FOP will not experience continued progression of this terrible disease.
Caleb's Story
As a toddler, Caleb had countless ear infections and appeared to be stiff. As he grew, his neck mobility became more noticeable and he din't have full range of motion. He had trouble hearing at school and complained of random pains which we attributed to growing pains. Full body x-rays showed fusion of multiple vertebrae and extra bones throughout his body. As the pain and bones increased and after many years of research and countless doctor visits, a terrifying disease found on the Internet led us to the University of Pennsylvania where Caleb was finally diagnosed at age 10 with fibrodysplasia ossificans progressiva (FOP).
FOP causes soft tissues, ligaments, and muscles to turn into bone eventually stealing mobility from the patient as their body is imprisoned in bone. FOP is an ultra-rare disease affecting 1 in 2 million. There are only about 800 people living with it in the world today. There is no treatment or cure for FOP at this time.
Today, Caleb is an energetic, caring 12-year-old boy and although he does have many extra bones throughout his body, he still has his mobility. He experiences flare-ups frequently causing him pain and stiffness in multiple parts of his body most days. We are hopeful that the limitations caused by this disease will remain mild for Caleb until a cure or treatment can be found. For now, he is able to continue to play the sports he loves (with some limitations) with his whole heart and for that we are truly thankful. As with everything, he faces this challenge tough as nails, with a unique outlook, no fear and a happy heart. He is truly a special soul and we feel blessed to have been chosen to raise him.
Thank you for helping us find a cure for Caleb!
Love,
Caleb, Scott, Stephanie and Alli Burgess
The Devil Whispers,
"You Can't Withstand The Storm."
The Warrior Replied,
"I AM The Storm."
Bombers for Bones benefits the
International FOP Association
in honor of Caleb Burgess.
Questions? Contact bombersforbones@gmail.com
Checks may be made payable to "IFOPA" and mailed to:
PO Box 800084
Kansas City, MO 64180
*Please include "Bombers for Bones" in the memo line.
Saturday, July 21, 2018
10:00 AM MDT - 6:00 PM MDT
Metzler's Ranch Park
4175 Trail Boss Drive
Castle Rock, CO 80104
Saturday, July 21, 2018
10:00 AM MDT - 6:00 PM MDT
Metzler's Ranch Park
4175 Trail Boss Drive
Castle Rock, CO 80104
Saturday, July 21, 2018
10:00 AM MDT - 6:00 PM MDT
Metzler's Ranch Park
4175 Trail Boss Drive
Castle Rock, CO 80104
Thank you for your support of Bombers for Bones and the IFOPA! We're excited and honored that you've chosen to join in the fight against FOP.
To make an even bigger impact, spread the word! Tell your community why you support Bombers for Bones by sending an email or sharing your support on social media.
Questions about Bombers for Bones can be directed to bomberforbones@gmail.com.
Questions about FOP or the IFOPA can be directed to together@ifopa.org.
Thank you again for your support of Caleb and all of those living with FOP!
Gratefully,
Michelle Davis
Executive Director
International FOP Association (IFOPA)