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When: Saturday, July 20, 2019
Where: Metzler's Ranch Park
4175 Trail Boss Dr.
Castle Rock, CO 80104
Schedule:
Participation Opportunities:
Sponsorship Opportunities:
Watch for a full list of sponsors joining soon!
EVENT SPONSOR
GRAND SLAM SPONSOR
Raptors Baseball
RockHardware
Brad McDonald
HOME RUN SPONSORS
Paul & Cheryl Bender
Denver Flooring & Finishes
Hottie Rob's Mobile Eats
Sandella Design
Sprinkle Me Smitten
The Town of Castle Rock
The Wine Group
TRIPLE SPONSORS
Terek Gammal
Randy E Johnson Insurance Agency, Inc.
5280 Development Company
Castle Pines Jewelers
TopYa
DOUBLE SPONSORS
Peak 360 IT
HCI Interiors & Remodel LLC
Castle Rock Rental
Great Dane Realty
K Company Realty
Max Waste Services
David & Bree Naibauer
Popcorn Bliss
South Denver GI
The Schmidt Family
Auction & Raffle
Meadows Golf Course
Broken Tee Golf Course
Raccoon Creek Golf Course
The Links Golf Course
Highlands Ranch Golf Course
Fox Hollow Golf Course
The Lodge Casino
Olive Garden Littleton
Castle Rock Bike and Ski
The Denver Zoo
Gateway Park Fun Center
Molly Brown House
VooDoo Comedy Lounge
My Make Studio
Museum of Nature & Science
Honest-1 Auto Care
Skate City Littleton
Denver Esacpe Room
Bandimere Speedway
Boondocks Parker
Blitz Paintball
Bowlero
Paint and Sip Studio #171
Treehouse Adventure Park
Durango & Silverton Narrow Gauge Railroad
Putters Pride Littleton
Prep Baseball Showcase
What is Bombers for Bones?
Bombers for Bones is a Home Run Derby & Skills Competition in Castle Rock, Colorado open to all ages!
Participants will attempt to hit home runs off a live pitcher to compete for trophies and titles within their age groups. In addition, participants are invited to test their baseball skills - pitch speed and accuracy, and time around the bases.
Enjoy baseball themed food, bid on our silent auction, purchase raffle tickets for amazing prizes, and so much more!
Funds raised go directly to the International Fibrodysplasia Ossificans Progressiva (FOP) Association - IFOPA. The IFOPA is a nonprofit organization that supports research for FOP treatments and a cure, provides support to patients and families living with FOP, and hope to our family.
Teams and individuals of all ages are welcome!
What is FOP?
Fibrodysplasia ossificans progressiva is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There is no treatment or cure for FOP. There are no other known examples in medicine of one normal organ system turning into another. FOP is an ultra-rare genetic disease affecting 1 in 2 million people. There are an estimated 800-1,100 diagnosed case of FOP in the world.
The funds raised will go towards research grants working on treatment of FOP and support of IFOPA patients and their families. There are four FOP drugs advancing through clinical trials. Hope is alive in the FOP community!
Our fundraising efforts are focused on moving the research along so maybe, someday, those with FOP will not experience continued progression of this terrible disease.
Caleb's Story
As a toddler, Caleb had countless ear infections and appeared to be stiff. As he grew, his neck mobility became more noticeable and he didn't have full range of motion. He had trouble hearing at school and complained of random pains which we attributed to growing pains. Full body x-rays showed fusion of multiple vertebrae and extra bones throughout his body. As the pain and bones increased and after many years of research and countless doctor visits, a terrifying disease found on the Internet led us to the University of Pennsylvania where Caleb was finally diagnosed at age 10 with fibrodysplasia ossificans progressiva (FOP).
Today, Caleb is an energetic, caring 13-year-old boy and although he does have many extra bones throughout his body, he still has his mobility. He experiences flare-ups frequently causing him pain and stiffness in multiple parts of his body most days. We are hopeful that the limitations caused by this disease will remain mild for Caleb until a cure or treatment can be found. It's been a tough year for Caleb but we are happy to report that he is enrolled in a clinical trial. For now, he is able to play the sport he loves, baseball, with his whole heart and for that we are truly thankful. As with everything, he has faced this challenge tough as nails, with a unique outlook, no fear and a happy heart. He is truly a special soul and we feel blessed to have been chosen to raise him.
Thank you for helping us find a cure for Caleb!
Love,
Caleb, Scott, Stephanie and Alli Burgess
The Devil Whispers,
"You Can't Withstand The Storm."
The Warrior Replied,
"I AM The Storm."
Bombers for Bones benefits the
International FOP Association
in honor of Caleb Burgess.
Questions? Contact [email protected]
Checks may be made payable to "IFOPA" and mailed to:
PO Box 800084
Kansas City, MO 64180
*Please include "Bombers for Bones" in the memo line.
Saturday, July 20, 2019
10:00 AM MDT - 6:00 PM MST
Metzler's Ranch Park
4175 Trail Boss Drive
Castle Rock, CO 80104
Saturday, July 20, 2019
10:00 AM MDT - 6:00 PM MST
Metzler's Ranch Park
4175 Trail Boss Drive
Castle Rock, CO 80104
Saturday, July 20, 2019
10:00 AM MDT - 6:00 PM MST
Metzler's Ranch Park
4175 Trail Boss Drive
Castle Rock, CO 80104
Thank you for your support of Bombers for Bones and the IFOPA! We're excited and honored that you've chosen to join in the fight against FOP.
To make an even bigger impact, spread the word! Tell your community why you support Bombers for Bones by sending an email or sharing your support on social media.
Questions about Bombers for Bones can be directed to [email protected].
Questions about FOP or the IFOPA can be directed to [email protected].
Thank you again for your support of Caleb and all of those living with FOP!
Gratefully,
Michelle Davis
Executive Director
International FOP Association (IFOPA)