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Help us fund research for a cure for FOP by participating in our
1st annual Home Run Derby and Skills Competition! All ages are welcome including adults!
When: Saturday, July 15, 2017
Time:
- 10:30 AM Opening ceremony
- 11:00 AM - 6:30 PM Home Run Derby and Skills competition - Come anytime! Participants will be directed to the correct field for your age group at check in.
- 7:00 PM - Awards
- Sunset ~ 9 PM - Movie on the field: The Sand Lot
Where: Douglas County Fairgrounds Ball Fields
500 Fairgrounds Drive, Castle Rock, CO 80104
Bombers for Bones benefits the International FOP Association in honor of Caleb Burgess.
Our online silent auction is now live! Bid on a variety of amazing items - including VIP Denver Broncos experiences, jewelry gift cards, golf packages and more!
Participation Opportunities:
- $20 entry into skills competition and home run derby
- $35 entry into skills competition and home run derby plus t-shirt
Sponsorship Opportunities:
- $100 - Single: company name listed on the website
- $250 - Double: company name on t-shirt, listed on website
- $500 - Triple: company name on t-shirt, included on custom large banner with all companies listed
- $1,000 - Home Run: company name on t-shirt, included on full group banner plus custom single banner they get to take home
- $2,500 - Grand Slam, company name t-shirt, banners, special sponsorship during the event (e.g. Movie night, popcorn and cotton candy, drinks, bounce house), speaking opportunity before their portion
- $10,000 - Event Sponsor, “Presented By” on all promotional materials, speaking opportunity at the event, special gift in recognition
Thank you to our sponsors!
GRAND SLAM SPONSOR
PEMA Foundation
HOME RUN SPONSOR
Raptors Baseball
Mountain Plains Catering
Mile High ATM
The Cretonne Company - Eddie Ramey
Frosty Freeze
The Wine Group
Denver Flooring & Finishes
Efficiency Garage Door Service
Heinrich Properties
TRIPLE SPONSOR
5280 Developments, LLC.
Ferguson Enterprises
FI Servicing, LLC.
Vector Solutions
Merek Group
Irish Rover Pub/AJ O'Gorman's Inc.
Denver Lumber Company
Castle Rock Area Newsletters.com
HCI INTERIORS & REMODEL, LLC
DOUBLE SPONSOR
Centurion Discovery
The Kitchen Showcase, Inc.
Petron Development
Staples
Thrivent Financial
ANONYMOUS
AJ O'Gormans Inc.
Max Waste Services
The K Company Realty
SINGLE SPONSOR
Chic Couture & Chic Sole
Colorado Event Marketing
Meier & Giovanini, LLC
About the Event
Participation in the event is open to all ages (even adults), beginning at 10:30 AM with an opening ceremony and competition from 11 AM - 6:30 PM. . Registrants will have the opportunity to test their skills against their peers in events including a home run derby, fastest pitch, base-running and more. The day includes special visits from a dragster race team, local Police K9 Unit, Fire Department, and will include food, and a silent auction. The event culminates in a special, evening viewing of the movie The Sandlot on the field!
All proceeds go directly to the International FOP Association (IFOPA), a registered 501(c)(3) charitable organization that is the world’s leading resource in combating FOP. The event is sponsored, in part, by local youth sports organization Raptors Athletics.
What is FOP?
Fibrodysplasia Ossificans Progressiva is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There is no treatment or cure for FOP. There are no other known examples in medicine of one normal organ system turning into another. FOP is Genetic disease affecting 1 in 2 million people. There are only ~800 people worldwide living with FOP.
The funds raised will go towards research grants working on treatment of FOP and support of IFOPA patients and their families. A clinical trial currently underway and in phase 2 is showing promising results in possibly reducing new bone growth when a flare up occurs while patients are on the trial medication! Our fundraising efforts are focused on moving the research along so maybe, someday; those with FOP will not experience continued progression of this terrible disease.
Caleb's Story:
Caleb was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) in July of 2016 after many years of research and countless doctor visits. As with everything, he has faced this challenge tough as nails, with a unique outlook, no fear and a happy heart. He is truly a special soul and we feel blessed to have been chosen to raise him. Of the 800 people worldwide living with FOP, only 4 including Caleb have the specific genetic mutation that Caleb has. The good news is that this mutation is thought to be less severe than the “classic” mutation. We are hopeful that the limitations caused by this disease will remain mild for Caleb. Truthfully, we do not know how quickly he could progress, if he will, or when he will progress.
For now, he has been able to continue to play the sports he loves, (with some limitations) with his whole heart and for that, we are truly thankful.
We cannot thank everyone enough for the incredible support and love we have received in the last year. Although it has been difficult, it has also been amazing. We have seen the very best in people. The kindness we have been shown has filled our hearts. Caleb has absolutely loved seeing all of the funds coming in and hearing your words of encouragement. Although Caleb has his mobility, he is feeling the physical affects of this disease on a daily basis and the uncertain future has been difficult for him (and us) to process. We have found comfort in knowing research continues and that the funds we are raising are helping not just Caleb but others with FOP as well.
We truly appreciate any support you can provide. Thank you so much from the bottom of our hearts!
Love,
Caleb, Scott, Stephanie, and Alli Burgess
The Devil Whispers,
"You Can't Withstand The Storm."
The Warrior Replied,
"I AM The Storm."
Questions? Contact bombersforbones@gmail.com
Checks may be made payable to "IFOPA" and mailed to:
1520 Clay Street, Ste H2
North Kansas City, MO 64116
*Please include "Bombers for Bones" in the memo line.
2017 Bombers for Bones Home Run Derby and Skills Competition
Saturday, July 15, 2017
-
Douglas County Fairgrounds Baseball Fields
500 Fairgrounds Drive
Castle Rock, CO 80104
2017 Bombers for Bones Home Run Derby and Skills Competition
Saturday, July 15, 2017
-
Douglas County Fairgrounds Baseball Fields
500 Fairgrounds Drive
Castle Rock, CO 80104
Checkout
2017 Bombers for Bones Home Run Derby and Skills Competition
Saturday, July 15, 2017
-
Douglas County Fairgrounds Baseball Fields
500 Fairgrounds Drive
Castle Rock, CO 80104
Thank You!
Henry Ford once wrote,
“Coming together is a beginning.
Keeping together is progress.
Working together is success.”
Thank you for working hand in hand with your most recent gift to the IFOPA! Your gift is supporting our successes in advancement of research, awareness, education, and vital connections for patients and families.
In 2016 there were victories in every one of these areas and in 2017 we look forward to even greater progress among our growing family of patients, researchers, and dedicated physicians. In fact, we’ve already achieved a great deal of victories in 2017:
- Unveiling of the IFOPA’s new website and Pinterest page to provide education, support and resources for FOP patients and families
- Launch of the IFOPA’s FOP Patient Registry in four additional languages – German, Italian, Portuguese and Spanish – providing the opportunity for more FOP patients around the world to contribute to FOP research
- Call for proposals for the third cycle of the IFOPA’s Competitive Research Grants Program funding $100,000 in grants for research projects focused on accelerating the development of safe and transformative therapies. These grants are in addition to the IFOPA’s $500,000 funding commitment to the Center for Research in FOP and Related Disorders at the University of Pennsylvania
- Announcement that the IFOPA and FOP Italia will host another Drug Development Forum – the first in Europe - in Oct. 2017; a unique opportunity for academic and pharmaceutical researchers along with FOP clinicians to share innovative research, foster collaboration, network, and advance therapies for people living with FOP.
One of the most exciting events of early 2017 was the hiring of Adam Sherman, Director of Research Development and Partnerships. There is so much happening in FOP research – the FOP Patient Registry now has 25% of the known patient population enrolled; multiple academic centers are actively working on FOP research; two clinical trials for FOP drug treatments are preparing to launch in 2017; and more – that the IFOPA’s Research Committee and Board of Directors made the decision to hire a full-time staff member dedicated to catalyzing the highest-quality research on FOP to drive toward treatments and a cure. Adam’s work includes informing the IFOPA’s research funding, developing research infrastructure, and promoting research connections.
Your generous donation means all the more because you recognize we are in this together. Let’s keep coming together and working together. Check out more news about the accelerating pace of change at ifopa.org. If you’re not already receiving FOP Connection, our monthly eNewsletter, be sure to sign up by clicking the Connect tab at the top of the home page.
And once again, thank you for supporting our worldwide FOP family.
Warm regards,
Paul T. Brinkman
Chairperson, Board of Directors
International FOP Association
The value of goods and services received per participant is $10. The IFOPA is a 501(c)3 nonprofit organization and donations are deductible to the full extent provided by law. We recommend that you consult your tax advisor concerning your individual circumstances.