Are you up for the challenge? Starting September 23rd, there are 100 days until 2021. Let’s MOVE out of this year by improving both our mental and physical health!
Join us, across the continents....#WalkRunRollforFOP
Walk, run or roll 1 mile (1,6 km) / 20 minutes daily for FOP Awareness! Start anytime!
Purchase event t-shirts here. All proceeds benefit the IFOPA and orders are submitted in batches so you can order anytime. Wear it, share it!
You can also donate to fund FOP research for a cure:
‘When we take care of ourselves first we are in a much stronger place to take care of those we love’
- Marie H. Fahlberg, Sweden and Sarah Casebolt, USA
To learn more about FOP, click here.
The story about our sons in brief:
Corey 17 years old, USA, diagnosed at age 14 with an FOP variant.
Hugo 22 years old, Sweden, diagnosed at age 2 years and 4 months with classic FOP.
Two different stories, but both with extra bone formations and limited movement after a long, painful struggle in the health care system due to lack of knowledge about FOP. That's why we want to raise awareness and to help find those who are not yet diagnosed.
"Join the movement! Get fresh air & remember to breathe and stay hydrated on the journey."
PS Find us on Facebook...Walk Run Roll for FOP...like, follow, get inspired, interact and share with us!
Thank you for your donation!
Thank you for your gift to help #cureFOP! We'll be emailing you a gift receipt right away.
Please visit the links below for more information on FOP, our FOP experts, and education for medical professionals/health care providers (HCPs):