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FOP causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. There are only 900 confirmed cases worldwide and only 285 known cases in the United States.
Your gift will help fund research to find treatments and a cure for FOP, to provide support programs and advocacy for those with FOP and their families, and to raise awareness about FOP. You can make a gift below or if you prefer, you can make a gift via PayPal here.