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Saturday, August 29, 2020
5:00 AM AKDT
Due to COVID-19, this year's event will be VIRTUAL so whether you live in
Kotzebue, across Alaska or beyond, join us to help color out FOP!
Registration for the 2020 event is free but you can support the purpose of Midnight Sun Color Run and support research to find treatments and a cure for FOP by:
If you're considering a donation, may we suggest our traditional per person registration fees?
The Midnight Sun Color Run is held
in honor of Dilyn Martin
who lives with the ultra-rare disease
fibrodysplasia ossificans progessiva (FOP).
2020 Midnight Sun Color Run
Saturday, August 29, 2020
Kotzebue, AK
2020 Midnight Sun Color Run
Saturday, August 29, 2020
Kotzebue, AK
2020 Midnight Sun Color Run
Saturday, August 29, 2020
Kotzebue, AK
Thank you for your support of the Midnight Sun Color Run!
See if your employer will make your support go twice as far.
If you have any questions before the event, please let us know. Check our event page for updates.
Your participation funds research, supports and educates families, generates awareness, and advocates
for those living with fibrodysplasia ossificans progressiva (FOP).
Because of you, there is hope and promise for the FOP community worldwide.
If you have questions about FOP or want to get more involved, email us at together@ifopa.org.
Thank you again from all of us at the International FOP Association (IFOPA)!
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