Become a Fundraiser or Donate Today to Advance Critical Research

 With your help, we can fund research to develop more treatment options and, ultimately, find a cure for fibrodysplasia ossificans progressiva (FOP).   

Lead the Charge. Start Your Fundraiser Today.

For 35 years, our community has been the driving force behind every research breakthrough in the fight against FOP. By starting a fundraiser, you become a vital part of that powerful legacy of hope and determination.

Your passion can power the pursuit of a cure. Every dollar you raise helps accelerate progress and gives hope to children and adults dreaming of a future without limits. Your support as a fundraising champion will directly help:

• Update and focus the research strategy on key areas that promise the greatest impact for everyone with FOP

• Amplify the patient voice through community-driven research and publications

• Prioritize efforts to enable successful clinical trials, like the STOPFOP clinical trial

• Invest in the next generation of our valued research tools: the FOP Registry and Biobank

• Support drug approvals and access to treatments as they move through clinical trials

Thank you for being a champion for our community. Your leadership brings us one step closer to a cure.

“For 35 years, the fight against FOP has been deeply personal for our family, starting with our love for Jud. That first event we hosted was about turning hope into action for him and for others. Knowing that your support today continues that crucial work means the world to us and brings a cure closer for everyone.” ~ Nick Bogard, father of Jud who lived with FOP