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The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
- Fund research to find treatments and a cure for FOP
- Support FOP families
- Raise awareness worldwide
- Advocate for those with FOP, their families and caregivers
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another.
Thank You to Our Donors Helping
Pursue a Cure for FOP!
Join Us for the First-Ever In Pursuit of a Cure Day of Giving
Our FOP community is on this path together for as long as it takes. When it comes to finding treatments and a cure, we won't leave any stone unturned.
100% of your gift in honor of the first-ever Day of Giving will help us fund critical research, including gene therapy, silencing RNA and the STOPFOP clinical trial.
Every contribution we receive up to the first $50,000 will be MATCHED dollar for dollar.
Please join us and be part of the next FOP breakthrough to develop more treatments and, ultimately, a cure for FOP. Make your gift to help fund critical research!
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Fundraiser First Name Fundraiser Last Name
The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
- Fund research to find treatments and a cure for FOP
- Support FOP families
- Raise awareness worldwide
- Advocate for those with FOP, their families and caregivers
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another.
Organization Name
Org Address Line 1
Org City, Org State Org Zip
Need help? Org Email
Thank You!
Thank you for your generous support of IFOPA research. Please share my fundraiser with your friends and family!
Fundraiser First Name Fundraiser Last Name
The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
- Fund research to find treatments and a cure for FOP
- Support FOP families
- Raise awareness worldwide
- Advocate for those with FOP, their families and caregivers
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another.
Organization Name
Org Address Line 1
Org City, Org State Org Zip
Need help? Org Email