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The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another.
Thank You to Our Donors Helping
Pursue a Cure for FOP!
Our FOP community is on this path together! For as long as it takes. When it comes to finding treatments and a cure, we are Relentless...
Your gift to this year's campaign will help us fund the next phase of FOP gene therapy research and the ACT for FOP program.
Every contribution we receive up to the first $25,000 will be MATCHED dollar for dollar.
Please join us in the Relentless pursuit of treatments and a cure for FOP. Please make your generous gift to In Pursuit of a Cure 2023 today.
I hope you’ll attend an exclusive LIVE research webinar on August 30. There will be three viewing options so you can hear updates in gene therapy research and learn about research priorities no matter where you live. Select the viewing time that works best for you. This live broadcast will be an exciting opportunity to learn updates in gene therapy and other
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The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another.
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Org Address Line 1
Org City, Org State Org Zip
Need help? Org Email
Thank You!
Thank you for your generous support of IFOPA research. Please share my fundraiser with your friends and family!
I hope you will join us on August 30 for the special LIVE webinar providing updates on FOP research. Choose from any of the times below:
6 am Eastern / 1000 am GMT
2 pm Eastern / 1800 pm GMT
7 pm Eastern / 2300 pm GMT
Fundraiser First Name Fundraiser Last Name
The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another.
Organization Name
Org Address Line 1
Org City, Org State Org Zip
Need help? Org Email