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Join Us In Pursuit of a Cure for FOP!
The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
- Fund research to find treatments and a cure for FOP
- Support FOP families
- Raise awareness worldwide
- Advocate for those with FOP, their families and caregivers
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another.
Thank You to Our Donors Helping
Pursue a Cure for FOP!
Your support of the IFOPA's In Pursuit of a Cure - Investing in Progress. Believing in Hope. will fund NEW ACT for FOP drug development grants and phase 2 of the IFOPA’s gene therapy research grant at the University of Massachusetts.
Gene therapy development is a long road. The process from early stage research to regulatory approval can take a decade or more. But if successful, gene therapy has the potential to cure treated cells and prevent the development of FOP bone. We believe that we simply must pursue every avenue of research and leave no stone unturned. We can search for treatments and a cure together!
I’m fundraising to help the IFOPA reach its goal of raising $300,000 to expand FOP research grants — and I hope you’ll help me reach my goal! The first $50,000 in donations will be matched.
For more information about the In Pursuit of a Cure 2021 Campaign visit ifopa.org/curefop. Please help me transform the lives of people living with FOP and their loved ones!
Thank you for supporting my efforts for families living with FOP!
I hope you’ll attend a special virtual event In Pursuit of a Cure - Investing in Progress. Believing in Hope. on August 25 or 26 (select the viewing time that works best for you). This live broadcast (available on Facebook or YouTube) will be an exciting evening in support of expanding FOP research. It’s a virtual event, so you can take part from the comfort of your home!
There’s one other way you can help In Pursuit of a Cure! Invite your friends and family to watch. Simply email Cathryn Roys, Community Fundraising Manager, at [email protected] and she’ll get you what you need.
For more information about the In Pursuit of a Cure 2021 Campaign, visit ifopa.org/curefop. Please help me transform the lives of people living with FOP and their loved ones.
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Fundraiser First Name Fundraiser Last Name
Join Us In Pursuit of a Cure for FOP!
The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
- Fund research to find treatments and a cure for FOP
- Support FOP families
- Raise awareness worldwide
- Advocate for those with FOP, their families and caregivers
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another.
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Org City, Org State Org Zip
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Thank You!
Thank you for your generous support of IFOPA research. Please share my fundraiser with your friends and family!
I hope you will join us on August 25 or 26 for the special virtual event in support of expanding FOP research. Choose from any of the times below:
Wednesday, August 25, 2021
- 7 pm EDT (United States, Canada and Latin America)
- 9 pm EDT (United States, Canada and Latin America)
Thursday, August 26, 2021
- 7 pm ACST/5:30 am EDT (Australia and New Zealand)
- 7 pm HKT/7 am EDT (Asia)
- 7 pm BST/2 pm EDT (United Kingdom, Europe, the Middle East and Africa)
Fundraiser First Name Fundraiser Last Name
Join Us In Pursuit of a Cure for FOP!
The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
- Fund research to find treatments and a cure for FOP
- Support FOP families
- Raise awareness worldwide
- Advocate for those with FOP, their families and caregivers
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another.
Organization Name
Org Address Line 1
Org City, Org State Org Zip
Need help? Org Email