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Join Us In Pursuit of a Cure for FOP!
The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Thank You to Our Donors Helping
Pursue a Cure for FOP!
This year, the IFOPA is launching the In Pursuit of a Cure Campaign to fund NEW ACT for FOP
competitive research grants and the IFOPA’s first-ever targeted research grant in gene therapy.
Gene therapy doesn’t replace drug development or current and future clinical trials. And gene therapy
development is a long road. The process from early stage research to approval can take a decade or more. But if successful, gene therapy has the potential to cure FOP by correcting FOP at the source—the FOP gene.
We simply must pursue every avenue and leave no stone unturned for our FOP family, which is why I’m so excited about the In Pursuit of a Cure Campaign.
I’m fundraising to help the IFOPA reach its goal of raising $250,000 to expand FOP research grants — and I hope you’ll help me reach my goal! The first $50,000 in donations will be matched.
For more information about the In Pursuit of a Cure Campaign at ifopa.org/curefop. Please help me transform the lives of people living with FOP and their loved ones!
Thank you for supporting and my efforts for families living with FOP!
I hope you’ll attend a special virtual event In Pursuit of a Cure - An Evening of Inspiration & Possiblity on August 26 or 27 (select the viewing time that works best for you). This live broadcast (available on Facebook or YouTube) will be an exciting evening in support of expanding FOP research. It’s a virtual event, so you can take part from the comfort of your home!
There’s one other way you can help In Pursuit of a Cure! Invite your friends and family to watch. Simply email Cathryn Roys, Community Fundraising Manager, at cathryn.roys@ifopa.org and she’ll get you what you need.
For more information about the In Pursuit of a Cure Campaign, visit ifopa.org/curefop. Please help me transform the lives of people living with FOP and their loved ones.
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Fundraiser First Name Fundraiser Last Name
Join Us In Pursuit of a Cure for FOP!
The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Organization Name
Org Address Line 1
Org City, Org State Org Zip
Need help? Org Email
Thank You!
Thank you for your generous support of IFOPA research. Please share my fundraiser with your friends and family!
I hope you will join us on August 26 or 27 for the special virtual event in support of expanding FOP research.
Fundraiser First Name Fundraiser Last Name
Join Us In Pursuit of a Cure for FOP!
The IFOPA is the International Fibrodysplasia Ossificans Progressiva (FOP) Association. Their mission is to:
FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Organization Name
Org Address Line 1
Org City, Org State Org Zip
Need help? Org Email