Awareness Day 2023

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Have Your Gift Doubled & Help End the Tragedy of Misdiagnosis & Isolation!

Diagnosis of a rare disease like FOP is critical. Without a proper diagnosis, harmful procedures like biopsies, surgeries and even childhood vaccinations can cause more harm and lead to more severe symptoms.

Diagnosis of a rare disease is not just terrifying — it’s isolating, too. When you help raise awareness, you help end isolation for so many who live alone with FOP.

With your Awareness Day gift, you're helping the FOP community meet the challenge to end the tragedy of misdiagnosis and isolation — and generous friends of the IFOPA will double your gift (up to $50,000)! Please give today so your donation will be doubled to go twice as far to raise awareness and support other IFOPA mission-critical programs.

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Thank you for your gift to help end misdiagnosis and support the mission-critical work of the IFOPA! We'll be emailing you a gift receipt right away.