Awareness Day 2022

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Have Your Gift Doubled & Help End the Tragedy of Misdiagnosis & Isolation!

Diagnosis of a rare disease like FOP is critical. Without a proper diagnosis, harmful procedures like biopsies, surgeries and even childhood vaccinations can cause more harm and lead to more severe symptoms. As one FOP mom said, “It seems that almost every person with FOP is initially misdiagnosed and undergoes unnecessary medical treatment.”

Diagnosis of a rare disease is not just terrifying — it’s isolating, too. When you help raise awareness, you help end isolation for so many who live alone with FOP. One family shared, “We thought Zohra was the only child in the world with this special disease that even doctors didn’t know about. By connecting with other FOP patients, she became happier and more hopeful.”

With your help, we can Hope. Believe. Wish. for a world without FOP.

Join with the global FOP community to celebrate April 23, the day the FOP gene discovery was announced. With your Awareness Day gift, you're helping the FOP community meet the challenge to end the tragedy of misdiagnosis and isolation.

The passion of our community to address these issues has inspired even more generous friends to join us. This year, our Awareness Day match has grown to $50,000! But we must raise $50,000 by April 30 to be eligible. Please give today so your donation will be doubled to go twice as far to raise awareness and support other IFOPA mission-critical programs.

Your donation helps fund FOP research, provide education and support programs for FOP families worldwide and raise FOP awareness worldwide. Thank you for making a donation today!

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Thank you for your gift to help end misdiagnosis and support the mission-critical work of the IFOPA! We'll be emailing you a gift receipt right away.