Donate Today to Advance Critical Research — 100% of every dollar raised goes directly to fund research

 With your help, we can fund research to develop more treatment options and, ultimately, find a cure for fibrodysplasia ossificans progressiva (FOP). 

FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. In people with FOP, bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons them in bone. There are no other known examples in medicine of one normal organ system turning into another. The mission of the International Fibrodysplasia Ossificans Progressiva (FOP) Association (IFOPA) is to:

• Fund research to find treatments and a cure for FOP
• Support FOP families
• Raise awareness worldwide
• Advocate for those with FOP, their families and caregivers

Learn more about the IFOPA here. 

Since 1990, we’ve been innovating, seeking out, and funding the most advanced and promising research. Together, we have made great strides in the last 34 years, but we need to do more — and we need your help. Your mission-critical gift: 

• Funds the next scientific discovery that unlocks new information about FOP 

• Discover options to stop flare-ups and the growth of extra bone

• Helps us find treatment options to manage pain

• Supports the investigation of imaging alternatives to develop new approaches for measuring FOP bone formation

• Paves the way for one day finding a cure 

Learn more about the In Pursuit of a Cure Day of Giving here.

Thank you for investing in a more hopeful tomorrow for everyone impacted by FOP!