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About the 2019 FOP Family Gathering:
Family Gatherings are an exciting opportunity to learn from FOP experts and one another, reconnect with old friends, and develop new relationships. The IFOPA is pleased to present the 2019 Gathering on November 14-17 in Orlando, Florida, USA. Please note that all meeting presentations and materials will only be available in English.
Agenda:
Thursday, Nov. 14 (9 am to 2 pm) – The IFOPA will be hosting an optional pre-conference workshop. The Resilient Living Workshop will focus on providing individuals with FOP, or their family members, the background and tools to incorporate resilient practices into everyday living. The workshop is open to participants 18 years and older. You will register for the pre-conference workshop when you register for the Family Gathering. Click here to learn more about the Resilient Living Workshop.
Thursday, Nov. 14 (4 to 10 pm) – The Family Gathering will begin on Thursday afternoon with a joint reception and dinner with attendees from the FOP Drug Development Forum. We will celebrate this rare opportunity to have researchers, clinicians and FOP families together at the same time. The reception will include scientific poster presentations which will allow families the opportunity to learn from researchers and ask questions.
Friday, Nov. 15 – We’ll have a full day with presentations in the morning and breakouts in the afternoon. Ask a Doctor and Ask a Dentist meetings will also take place on Friday afternoon. There will be a group dinner at the hotel on Friday evening.
Saturday, Nov. 16 – Saturday will be the last day of general sessions in the morning followed by afternoon breakouts. Ask a Doctor and Ask a Dentist meetings will also take place on Saturday afternoon. Saturday evening you are free to explore the resort or venture out in Orlando with old and new friends.
Sunday, Nov. 17 – Sunday will be an additional day of Ask A Doctor and Ask A Dentists meetings with the opportunity to participate in the FOP Biobank, visit the Resource Connect room, or shop at the IFOPA store.
Check out the preliminary itinerary.
Ask A Doctor and Ask A Dentist Meetings:
During the 2019 Family Gathering, there will be a limited number of medical and dental meetings with a team of FOP experts. The purpose of these meetings is to give families the opportunity to speak with experts in the FOP field and ask questions about recent concerns; no written notes are provided following your meeting. You will sign up to participate when you complete your registration.
Registration Rates:
Registration includes Thursday's dinner, two breakfasts, two lunches, and a group dinner on Friday evening.
Registration Rates for FOP Families
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Individual living with FOP - Complimentary
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First family member, caregiver or friend - $100 USD
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Additional family members or attendants (age 16+) - $150 each USD
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All other guests (5 to 15 years old) - $75 each USD
Academic Researcher or Health Care Professional - $350 per person
Biotech, Pharma and Other Corporate Entities - $550 per person
Event Hotel:
The 2019 Family Gathering will be held at the Wyndham Grand Orlando Resort Bonnet Creek. The IFOPA is offering a special room block at the event hotel at the rate of $199/night. This rate is available for stays between November 7 and 21, 2019. Reservations should be made between May 1 and October 21, 2019 to receive this discounted rate. Rooms are available with a king bed or two double beds; most king rooms also include a pull-out sofa sleeper.
The hotel does offer several types of accessible rooms. You will note which type of room you require and any other accommodations you need in your Family Gathering registration.
Travel:
As we have deeply discounted registration, attendees are responsible for their own hotel and travel expense. Orlando International Airport (MCO) is the closest airport to the Wyndham Grand Orlando Resort Bonnet Creek.
Wyndham Grand Orlando Resort Bonnet Creek
14651 Chelonia Parkway
Orlando, FL 32821
Questions?
Please direct all questions to familygathering@ifopa.org.
Register in 2 Easy Steps
1. To register for the FOP Family Gathering click the green Register button below. Registration closes Monday, November 4.
2. To book your hotel at the Wyndham Grand Orlando Resort Bonnet Creek and receive the special rate of $199/night USD you must use the IFOPA hotel reservation website. You will receive the hotel reservation link when you have completed your Family Gathering online registration. Room reservations must be made by October 21, and are available on a first-come, first-served basis.
Your registration for the 2019 FOP Family Gathering has been received. We are excited that you will be with us and others from the FOP community in Orlando! A copy of your receipt will be emailed to you.
The next step is to register for a hotel room. The Gathering will be held at the Wyndham Grand Orlando Resort Bonnet Creek. The IFOPA is offering a special room block at the event hotel at the rate of $199/night. Reservations should be made by Oct. 21 in order to get this rate. Rooms are available with a king bed or two double beds; most king rooms also include a pull-out sofa sleeper. The hotel does offer several types of accessible rooms which you should have requested in the registration you just completed.
To book your room at the group rate, click here. You may call the Wyndham to check availability and make a reservation at 1-407-390-2300 or 1-800-996-3426
Questions? Email familygathering@ifopa.org
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Get in touch! familygathering@ifopa.org or