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April 19, 2018 at 6:00 pm
Mission Sponsor | $50,000
2 tables of ten
VIP seating
Outside back journal cover*
Journal video display
Special recognition evening of event
Acknowledgement in IFOPA and UPenn report
Hope Sponsor | $25,000
1 table of ten
VIP seating
Inside journal cover*
Journal video display
Special recognition evening of event
Acknowledgement in IFOPA and Penn report
Diamond Table | $15,000
1 table of ten
Preferred seating
Diamond journal ad*
Journal video display
Special recognition evening of event
Acknowledgement in IFOPA and UPenn report
Emerald Table | $10,000
1 table of ten
Preferred seating
Emerald journal ad*
Journal video display
Special recognition evening of event
Acknowledgement in IFOPA and UPenn report
Ruby Table | $7,500
1 table of ten
Ruby journal ad*
Journal video display
Special recognition evening of event
Sapphire Table | $5,000
1 table of ten
Sapphire journal ad*
Journal video display
Special recognition evening of event
Diamond | $1,500 - Diamond name listing in journal
Emerald | $1,000 - Emerald name listing in journal
Ruby | $750 - Ruby name listing in journal
Sapphire | $500 - Sapphire name listing in journal
Topaz | $350 - Topaz name listing in journal
Diamond Page | $1,500
Emerald Page | $1,000
Ruby Page | $750
Sapphire Page | $500
White Page (Black & White only) | $200
*Full page ads are 6x9. Fully designed ads must be sent as pdf files, CMYK with fonts outlined by March 29. Send artwork to sara.brown@ifopa.org
Thank you to our sponsors:
Ritz Carlton Battery Park - New York / The Wagner Hotel
2 West Street
New York, NY 10004
EARLY CHILDHOOD (LIFE BEFORE FOP)
Ashley was born in 2002 in Cary, North Carolina. Like most children with FOP, Ashley was in almost every respect a normal child at birth except for the big toe of each foot, which were malformed. It appeared as though Ashley was born with bunions. In fact, the doctors diagnosed her with "congenital bunions". When she came home from the hospital she was fitted with toe braces and prescribed a routine of physical therapy to try to straighten her toes. It was only later that we learned that the malformed toes serves as an important early sign of FOP.
THE PATH TOWARDS DIAGNOSIS
When Ashley was six years old she broke her leg in a skiing accident. The orthopedic surgeon who treated her for the fracture noticed unusual growths on her leg and hip bones. We were referred to a specialist who diagnosed the growths as multiple osteochondroma, a bone condition where bone tumors grow at the growth plate areas. This condition must be monitored for life as the bone growths can possibly break off, become so large that they limit joint movement and exert pressure on nerves and surrounding tissue and, in later years, may become cancerous.
This condition required Ashley to be seen at the Hospital for Special Surgery (HSS) and Memorial Sloan-Kettering Cancer Center on a regular basis. Through it all, and long before her diagnosis with FOP, Ashley participated in many activities including judo, tae kwon do and ice hockey, but she especially enjoyed playing soccer. As a family we were very active and often hiked, camped and skied together.
CLICK HERE TO CONTINUE READING ASHLEY'S STORY
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Get in touch! or
Instructions for Journal ads: Full page ads are 6x9. Fully designed ads must be sent as pdf files, CMYK with fonts outlined by March 29. Send artwork to sara.brown@ifopa.org
,
Get in touch! or
,
Get in touch! or
Instructions for Journal ads: Full page ads are 6x9. Fully designed ads must be sent as pdf files, CMYK with fonts outlined by March 29. Send artwork to sara.brown@ifopa.org
,
Get in touch! or